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Katygrace Krusaders

TeamDonationGoal: 
3,500.00
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Becoming a parent is an amazing gift. Here is my story of our daughter, our hero and heart warrior. Katygrace’s heart defect was detected during the first ultrasound, at 18 weeks of pregnancy. At 18 weeks is when I was told she was going to be born with Tetralogy Of Fallot with Pulmonary Atresia. At this point all my prenatal care was transferred from Nashua, New Hampshire to Boston, Massachusetts and there we met our cardiologist Dr. David Brown at Boston Children’s Hospital. He informed us that our daughter would need surgery at birth. She would need surgery at birth because she had a hole in her heart and did not have a pulmonary artery valve. The surgery would create a pulmonary artery with a conduit.

And so our adventure began, 2/4/10 Katygrace O’Neil was born weighing 5 pounds 2 ounces 17 inches long. She was born at 8:53 a.m. at Beth Israel, in Boston Massachusetts. Right from birth, Katygrace was rushed away from me and transferred by ambulance to Boston Children's ICU. My husband and sister went from Beth Israel to Boston Children's to wait for her arrival. I selfishly was left with no husband, and no child in the recovery room. Luckily the nurses were able to provide me with a picture of my tiny "peanut". It was very difficult for me to see Katygrace with all sorts of tubes. It was extremely difficult not being able to feed my newborn, as she was required a feeding tube in her nose.. It took a lot of energy for her to eat and they were trying to conserve her energy pre op to surgery. At that time they did not want to force the bottle, but continue to offer it to her. She definitely knew how to suck, which was a good outlook. On 2/8/10 was the day of her open heart surgery. At this point my husband and I were going back and forth from one hospital to the next as I was a patient at Beth Israel and she was a patient at Children's. Katygrace came out of surgery after closing the hole in her heart and creating a pulmonary artery valve. She was at the hospital for a total of 3 weeks. She knew when she was ready to eat on her own as she pulled out the feeding tube when no one was looking and began to eat for us via the bottle again. So our journey began on Feb 22, 2010 to NH we went as a family of 3.

Every single goal they have given Katygrace she has beaten! Katygrace has gone above everyone’s expectations. She has had her share of illness since her surgery. She continues to smile at everything she does and eager to learn. She is a risk taker and despite her small size nothing holds her back. Katygrace outdid them again by not needing a heart cauterization as they had planned at 15 months, because her heart looked great. She was again supposed to need another heart surgery at the age of 3 to replace her pulmonary artery valve. Katygrace once again beat all odds, her cardiologist is just amazed. As we have learned Katygrace does everything as her pace.

Katygrace had her yearly follow up on March 22, 2017. This year we went anticipating this was the year she was going to need a heart catherization as last year her cardiologist Dr. Brown had prepared us this would be happening. This year was the first year we noticed Katygrace having symptoms and we were convinced an intervention was insight. Katygrace was becoming more and more tired and found it more difficult to attend her weekly dance sessions. Although, we went to her yearly follow up and Katygrace’s echo did not show any changes since last year. As they will continue to monitor, and most likely she will be able to go another year without any follow up. We are extremely fortunate as the cardiologist believes her tiredness may have nothing to do with her heart as it could be all the hype from her adjusting to first grade. And as we just received her second report grade for first grade, it truly shows as she has made leaps and bounds since school started. Katygrace you continue to amaze us, you continue to be your spunky, caring self, and joy to love

WalkerGoalSo Far...

250

Alexandra O'Neil

250

Amelia Nutting

2530

Amy Federico

2525

Amy Lockwood

250

Anthony Federico

250

April Lakhbal

250

Billy Bolter

25150

Christine McLaughlin

250

Crystal Russell

2550

David ONeil

2530

Dawn Bradbrook

2535

Dawn MacKenzie

250

Debbie

250

Ella (Tricia Drummond)

250

Janet Dunn

250

Jenni

250

Jillian Bradbrook

2535

Joe Lockwood

250

Joy Lockwood

250

Joyce Bolter

2575

Judith H

250

Judy Holt

25100

June Somerville

250

Katygrace O'Neil

20004521.2

Landon Sturtevant

250

Maddie Lockwood

250

Melissa (Judy Holt)

250

Mike Dunn

250

Mike Lockwood

250

Nadia Lakhbal

250

Norah Lockwood

250

Patty O'Neil

25120

Ryan Lockwood

250

Sarah Sturtevan

250

Shannon (Judy Holt)

250

Sissy Lasko

250

The Lockwoods

2550

The Sturtevants

2590

Tricia Drummond

250

Will Federico

2525